
What is Ableism? With Lene Andersen
Myrade
Description
<h2>Episode at a glance:</h2><ul><li>0:00 - 3:25: Lene’s journey with juvenile idiopathic arthritis from diagnosis at age 9 to using a power wheelchair starting at age 16 to now</li><li>3:25 - 10:40: What is ableism, and how does it relate to other forms of descrimination such as racism or sexism?</li><li>10:40 - 17:51 - What is health privilege?</li><li>17:51 - 24:30 - What is internalized ableism and how might it manifest in a person with chronic illness?</li><li>24:30 - 30:00 - How to dismantle internalized ableism: disentangling worth from productivity, not being ashamed to use mobility aids or daily living aids</li><li>30:00 - 34:50 - How Lene is not “wheelchair bound” but in fact a wheelchair is liberating and a helpful tool for everyday life</li><li>34:50 - 41:00 - The social model of disability and how external barriers are often more limiting to quality of life than the disability itself</li><li>41:00 - 46:50: The differences between living with an invisible versus visible disability</li><li>46:50 - 48:10: TRIGGER WARNING (suicide): Brief discussion of assisted suicide as it relates to disability</li><li>48:10 - 52:50 - How the tropes of disabled people in media (movies, books) are often incredibly over simplified</li><li>52:50 - 55:30: What does it mean to have a “dynamic disability” with fluctuating symptoms?</li><li>55:30 - endUniversal design versus accessibility</li></ul><h2>Speaker Bios:</h2><p>Lene (pronounced Lena) is an award-winning writer and rheumatoid arthritis advocate living in Toronto, Canada. Born and raised in Denmark, Lene has had autoimmune arthritis since childhood and has used a power wheelchair since her teens. She has a Masters Degree in Social Work and writes books about living well with RA and other types of chronic illness. Lene shares her home with a cat and too many books. </p><p>Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full li