Ep. 76: Patient-Driven Real World Data - Robert Chu (CEO Embleema)

Robert Chu is the Co-founder & CEO of Embleema. He is the former SVP of Global Technology for IQVIA & has created & managed data networks in over 20 countries in the U.S., Asia & Europe. Robert and I talk about the tremendous value of provable, secure real world data that can be directly shared by patients to improve bio-statistical models. We also discuss his recent business partnership with Alira Health and the origins of the HIVE data analytics platform. Embleema Website: https://embleema.com/ Disclaimer: The Health Unchained podcast is for informational and entertainment purposes only and we are not providing any sort of legal, financial, or medical advice. Please do your own research and due diligence before making any important decisions related to these matters. Topics Overview •Introduction to Robert's background •What drove you to the healthcare industry? •Experience at IBM, IMS Health, and IQVIA •How did you first hear about blockchain technology? •What is the vision for Embleema? Why did you start it? •Impact of COVID-19 on on Embleema •Epilepsy Foundation partnership and Epilepsy Digital Engagement Navigator (EDEN) •Long-term studies are difficult to track •Why should people care about real world evidence/data? •Can you describe Embleema's services/products/platforms and their technology stacks? •Hyperledger •HIVE – High Performance Integrated Virtual Environment – data repository and analytics platform built by Dr. Vahan Simonyan who transferred HIVE property to Embleema https://en.wikipedia.org/wiki/High-performance_Integrated_Virtual_Environment •Tracking patient consent •What tactics are you employing to address data privacy and personal ownership of one's data? •Any feedback from beta-testers of your platform? •What are the biggest barriers to blockchain adoption in healthcare? •Synthetic control arms in clinical studies – simulation of placebo group •Embleema's business model? •Company partners and major investors? •Alira Health Partnership goals •How would you describe the company cultur