Coping with Mitochondrial Disease - 10/5/2009

<p><span data-sheets-value="{&quot;1&quot;:2,&quot;2&quot;:&quot;MitoAction welcomes psychologist Carole Slipowitz PhD and Tufts Metabolism clinic nurse coordinator Maggie Orr RN M.Ed to discuss the challenges of dealing with a diagnosis of mitochondrial disease.&quot;}" data-sheets-userformat="{&quot;2&quot;:833,&quot;3&quot;:{&quot;1&quot;:0},&quot;9&quot;:0,&quot;11&quot;:4,&quot;12&quot;:0}">MitoAction welcomes psychologist Carole Slipowitz PhD and Tufts Metabolism clinic nurse coordinator Maggie Orr RN M.Ed to discuss the challenges of dealing with a diagnosis of mitochondrial disease.</span></p> <p>How do you cope with the unpredictable, invisible disease?</p> <p>Any chronic illness can be overwhelming - for a child, a family, or an adult with the condition.&nbsp; However, due to the unpredictability, complexity of symptoms, and uncertain prognosis, a diagnosis of mitochondrial disease is especially stressful...and exhausting.</p> <h5>About the Speaker</h5> <p>Maggie Orr is the nurse coordinator at the Tufts Medical Center Floating Hospital for Children in Boston; she has 10 years of prior experience with mitochondrial disease patients.&nbsp; Carole Slipowitz has over 20 years of experience as a psychologist; for the past 2 years she has served as a consultant to MitoAction's Mito 411 support line.</p>