28. Sharing Story’s Story, Life and Living with Special Needs & MED12 - Amber Frye

<p class="p1"><em>“We really feel strongly and passionately that our most important job as her parents is to give her the biggest piece of paper we can find and let her write her own story.”<span class="Apple-converted-space"> </span></em></p> <p class="p1">Welcome, everyone! In today's episode, we have the honor and gift of sharing Story’s story. Story was diagnosed with MED12, a very rare genetic disorder that is not commonly presented in girls.<span class="Apple-converted-space"> </span></p> <p class="p2"> </p> <p class="p1">Today, Amber talks to us about her experience growing her family, raising Story, shifting perspectives after her diagnosis, Story’s developing personality, having a new experience with her second baby, Nova, and looking ahead at the future.<span class="Apple-converted-space"> </span></p> <p class="p2"> </p> <p class="p1">Amber Frye is a mother to two, wife, entrepreneur, and musician. Amber’s strength comes from her experience as a mom since her daughter, Story, was diagnosed. She is determined to help other moms navigate their lives while raising kids with special needs.</p> <p class="p2"> </p> <p class="p1">Also on today’s show, we get a peek into a day in the life in the Frye household. Tune in this episode to hear more. Here we go!</p> <p class="p2"> </p> <p class="p1">In this Episode You’ll Learn: </p> <ul class="ul1"> <li class="li1">[06:26] A quick snippet about Amber.</li> <li class="li1">[09:30] What it was like growing her family.</li> <li class="li1">[12:17] The day I met Story.</li> <li class="li1">[15:04] Amber’s experience with Story.</li> <li class="li1">[20:44] Doing all the tests.</li> <li class="li1">[23:03] Opening up and shifting perspectives after Story’s diagnosis.</li> <li class="li1">[31:43] What is normal anyway?</li> <li class="li1">[34:17] What did Amber think about special needs before Story?</li> <li class="li1">[37:41] A day in the Frye household.</li> <li class="li1">[39:32] Amber’s advice to others regarding special needs and being a special needs family.</l