211 - Thriving with Duchenne, RDD 2023
211 - Thriving with Duchenne, RDD 2023

211 - Thriving with Duchenne, RDD 2023

Andrea Brillantes

53 min
Kids
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Description

<p dir="ltr" role="presentation">For Rare Disease Day 2023, we were honored to moderate a virtual panel with our friends at <a href= "https://www.jettfoundation.org/">Jett Foundation</a>.  The theme was Thriving with Duchenne; a Rare Disease Day event focused on mental health and anxiety and it features a diverse panel of patients, caregivers, a life coach, and a Psychologist. </p> <p dir="ltr" role="presentation">Duchenne Muscular Dystrophy (DMD) affects mostly males and causes progressive muscle damage in the entire body. It is the most common fatal pediatric disorder. </p> <p dir="ltr" role="presentation">Duchenne has no cure. But the individuals in this episode are determined to Thrive with Duchenne.</p> <p> </p>

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