202 - Addressing Independence and Accessibility with Rare Disease

<p><!-- wp:paragraph --></p> <p>Making the transition to independence is difficult to begin with. It is further complicated if you have a rare disease. <a href="https://www.curefa.org/meet-the-community/lauren-riggs" target="_blank" rel="noreferrer noopener">Lauren Riggs</a> joins The Dudes to talk about her recent experience moving away from home to go to school at University of Oklahoma and then grad school in Texas. Lauren lives with <a href= "https://www.curefa.org/what-is-friedreichs-ataxia" target="_blank" rel="noreferrer noopener">Friedreich's ataxia (FA)</a>. Her own journey with accessibility leads her to facilitate accessibility for others.</p> <p><!-- /wp:paragraph --> <!-- wp:paragraph --></p> <p>During this episode, Lauren explains the <a href= "https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/" target="_blank" rel="noreferrer noopener">Spoon Theory</a> which many people living with rare or chronic disease can relate to.</p> <p> </p> <hr /> <p> </p> <p>This episode is brought to you in part by Catalyst Pharmaceuticals and <a href="https://lemsaware.com/podcasts" target="_blank" rel= "noreferrer noopener">LEMSAware.com/podcasts</a>.</p> <p> </p> <figure class="wp-block-image aligncenter size-full is-resized"> <a href="https://www.lemsaware.com/podcasts"><img class= "wp-image-2853" src= "https://twodisableddudes.com/wp-content/uploads/2022/11/LemsAware-Podcast-Logo-RGB-digital-2.png" alt="" width="500" height="301" /></a></figure> <p>The LEMS Aware Podcast is not only dedicated to those affected by Lambert-Eaton myasthenic syndrome, a rare neuromuscular disorder but to those impacted by adult (late) onset rare disease. Whether you’re a patient or caregiver, rare disease can be isolating. Join us as we hear about the challenges of living with rare disease, share the stories and raise awareness of LEMS to the world. Listen wherever you get your podcasts! <a href= "https://www.lemsaware.com/podcasts" target="_blank" rel= "noreferrer noopener">https://www.lemsaware.com/podcasts