120 - What is Alport Syndrome? - Kevin Schnurr

<p><!-- wp:paragraph --></p> <p>In 2012, at the age of 26, Kevin Schnurr was unexpectedly diagnosed with Alport syndrome after being rushed to the hospital with high blood pressure. After two years on peritoneal dialysis, he received a living donor kidney transplant from a close friend in May 2014. Kevin’s desire to help others in the rare disease community led to him volunteering at Alport Syndrome Foundation (ASF) in 2012. He later served in a position as ASF Social Media Specialist in 2014 and part-time Patient Outreach Coordinator in 2016. Kevin currently serves as the Director of Communications & Patient Engagement (since Oct. 2019). He has facilitated the Teen Program at ASF Family Meetings, represented ASF at patient advocacy events and conferences, and co-moderates the <a href= "https://www.facebook.com/groups/alportsyndromefoundation/" target= "_blank" rel="noreferrer noopener">ASF Facebook Support Group Page</a>. In his free time, Kevin loves playing guitar, attending concerts, and collecting/voraciously reading books.</p> <p><!-- /wp:paragraph --> <!-- wp:paragraph --></p> <p>Website: <a href="http://alportsyndrome.org/" target= "_blank" rel="noreferrer noopener">alportsyndrome.org</a><br /> Socials: <a href= "https://www.facebook.com/alportsyndromefoundation/" target= "_blank" rel= "noreferrer noopener">https://www.facebook.com/alportsyndromefoundation/</a></p> <p><a href="https://twitter.com/AlportSyndFndn" target="_blank" rel="noreferrer noopener">https://twitter.com/AlportSyndFndn</a></p> <p><a href="https://www.instagram.com/alportsyndromefndn/" target= "_blank" rel= "noreferrer noopener">https://www.instagram.com/alportsyndromefndn/</a></p> <p><a href="https://www.youtube.com/user/TheASFoundation" target= "_blank" rel= "noreferrer noopener">https://www.youtube.com/user/TheASFoundation</a></p> <p><!-- /wp:paragraph --> <!-- wp:paragraph --></p> <p>Other links:<br /> <a href="https://www.organdonor.gov/" target="_blank" rel= "noreferrer noopener">https://www.organdonor.gov/</a><br /> <a href="https