65 - Meet Sydney

Today’s conversation is with Samantha and Addison, the parents to 3 year old Sydney from Ceresco, NE who has been diagnosed with Infantile Neuraxonal Dystrophy; a very rare genetic disease that only affects 300-500 people worldwide. Sydney has a profound impact on anyone she comes in contact with <br />and leaves an imprint on peoples hearts. This episode lets us in on who Sydney is and her complicated medical journey. <br /><br /><br /><br />Connect with Addison and Samantha<br /><a href="https://www.facebook.com/groups/sydthekid/" rel="noopener">https://www.facebook.com/groups/sydthekid/</a><br /><br />Connect with Go Shout Love:<br /><a href="https://goshout.love" rel="noopener">https://goshout.love</a><br /><a href="https://www.instagram.com/goshoutlove/" rel="noopener">https://www.instagram.com/goshoutlove/</a><br /><a href="https://www.facebook.com/goshoutlove/" rel="noopener">https://www.facebook.com/goshoutlove/</a>